Tuesday, July 31, 2012

Overwhelmed

That is how I am feeling lately, overwhelmed!  Oliver's therapy is going really well.  I am seeing some improvements.  His speech has just taken off!  If you aren't with him everything, you probably wouldn't be able to understand him, but this is huge!  I heard him say Mickey the other day instead of the sound that he used to make.  I was so excited!  I gave him a huge hug and I just wanted to cry.  I mean, we still have a lot a to work on, but things are moving in the right direction. 

We are going away for the weekend so hopefully that will be nice.  I just need a break from things, but I bet some of those things will come along.  I have started making more crafts though!  I decided that I was going to do the craft show this fall at our church.  I have always wanted to sell my crafts and I figure I might as well go for it!  I made a page on Facebook last year for my crafts and then just left it alone....you can see the badge on the left :)  I'm going to keep updating it and posting pictures.  Crafting is relaxing to me...my zen :)  But now, I must head to bed since I work at 5:30am! 

Friday, July 20, 2012

Therapy Update

Therapy has been going well.  He likes going and today he was very happy in the waiting room.  He kept saying "ball" because there are very big balls that he gets to play with!  We are still doing the brushing thing at home.  I don't really see a whole lot of changes, but it is early.  I have to admit, I have been getting very impatient with everything.  I just wish that he would talk instead of the whining and grunting.  He says words, but most are only the first part of the word.  I can see that he wants to say things, but just can't get them out.  Maybe I am just more frustrated because I see him trying and wanting to do things and it is killing me.  I am also getting really frustrated with the whole eating thing.  I want him to eat like he used to.  I'm not sure if I mentioned it last time, but Oliver is now 22 months old and has only gained 4 pounds since his 9 month check-up!  Who knows, maybe I just need to restart things.  It has been a crazy week.  My dad and youngest brother are on their way here, that should be a nice little break!  The boys love grandpa and uncle.  I have been struggling with a lot of things lately, but this will not turn into a pitty post :)  I need to think of the positives, right?!  Oliver may have this silly sensory issue, but it is healthy!  Jamie may have his little quirks, but he is healthy!  We have a couple of trips coming up and that will be a nice break.  Ok, well I'm going to end this post.  I'm going to think of something happy or fun to post about next.  I have so many ideas, I just need to get at them!

Tuesday, July 10, 2012

Time Out?!

Can I just have a time out?!  Our days are full of therapy appointments, doing therapy at home, changing diets, finding foods, and getting Jamie ready for pre-school.  I am going to a chiropractor, as well as Jamie, for my tail bone pain.  It isn't the traditional kind though, it is called Nucca and I love it.  There is no twisting, cracking and popping.  Turns out I have a lot of issues...haha!  My appointments got cancelled this week because my doc is out.  Since I need everything to get back in line and even again, it causes pain.  Well, my neck is really hurting and yesterday and today I woke up with a headache and had it all day....all because of my neck pain.  I called today and got 2 appointments in this week because I really don't think I can wait til next week.  I'm really hoping I feel better soon.  Then there is Oliver's therapy.  I know that what he has really isn't that bad compared to what other parents have to go through.  So, when I talk about having rough days, please don't think that I am comparing it to something like cancer.  I was going to write more, but my head is killing me and I need to work nice and early tomorrow.  Goodnight :)

Saturday, July 7, 2012

Finally

We finally got a diagnosis for Oliver last week....Sensory Integration/Processing Disorder.  I have suspected this but needed that confirmation.  We have a lot to work on with him.  He also lacks protection skills.  So, when he falls or trips or whatever, he doesn't try to protect himself or stop himself.  We were supposed to have his first therapy appointment on Monday, but his therapist had to cancel last minute.  We now have to wait til Friday.  I have to admit, I was not happy.  I know things come up, so I understand that.  I was just looking forward to getting started on this therapy thing.  He has therapy once a week for 45 minutes.  I have a feeling this will be very hard work, but I can't wait to see the results. 

*Update*
So, I started this post the other day and forgot about it.  We had Oliver's appointment and it went well.  He is over-sensitive in some areas and under-sensitive in others.  One type of therapy we need to do with him is called "brushing."  We have this special brush that we need to use on his arms, back, legs, and feet.  After that we have to do "joint compression" and I guess this releases chemicals or something.  It is suppose to help relax the child, make him more alert to his senses.  We have to do it every 2 hours while he is awake for 3 weeks.  Over time, his body will get used to this and stay more alert and he will be able to go longer between brushes.  It sounds a little strange and I'm not sure how exactly it works, I just know it does.  He also needs speech therapy, not only for his speech but because he has a weakness in his mouth.  This explains why he mainly eats soft and mushy foods because he doesn't have to work for it.  He has a lot of things that need to be worked on but his therapist said we should be able to do a lot for him.  It is good that we are doing it now because his body and brain can be re-trained as opposed to waiting to he was older.  I told her that I got to thinking about the future and that I don't want him to be in school but can't wash his hands, or play with paint, or do other fun things because he is scared.  She did say that there is no known cause of this either...I've been thinking a lot lately that I did something to cause this, even though I read that there is no clear cause.  I also told her how people have been asking if he is autistic and how much that irritates me.  She said he is not autistic and that people assume when kids have sensory issues that they automatically have autism (because some kids with autism have sensory issues).  Most people just don't understand what we are dealing with.  I have been trying real hard to ignore these people.  It sucks though when you have family members saying things.  Telling you that it your fault your child has issues, or that you are a bad parent and just need to discipline your child.  Some of these people don't have kids and think they know all, or they have kids and think what they do is what everyone should do.  I am also doing research on smoothies to boost Oliver's weight a little.  I weighed him the other day and he is 26 pounds which means he has only gained a half a pound since his 15 month check-up (he is almost 22 months).  I know weight gain slows down, but to me, a half a pound in 7 months is not enough.  He was always in the higher percentile for weight also, until he got all picky with his food, then he dropped down.  I'm hoping that after some speech therapy he will get better with food.  Just as I am typing this, Oliver said "baby" which probably doesn't sound like that big of a deal to most, but he is almost 2 and just said it now.  He doesn't even say "hi" so I'm going to take any words that I can :)